by Dr Reshma Shrinivas, Medical Officer In-charge, Project Samrkasha Thalassemia Day Care, Rashtrotthana Parishat, Bangalore
On 1st March 2016, when 13 year old Viren(name changed) was brought to Samraksha for the very first time, he was carried by his father on his back. The staff was surprised looking at a 13 yr old being carried by his father. The father explained to us saying Viren cannot walk even a furlong distance.
By Dr. Lawrence Faulkner. Director Sankalp-People Tree Bone Marrow Transplant Unit, Bangalore, India and Medical Coordinator Cure2Children Foundation Florence, Italy.
The decision whether to undergo BMT might be a difficult one for many families and patients. As a general rule most children born with thalassemia who have regular access to appropriate supportive care may have a long and productive life.
"For when the One Great Scorer
Comes to mark against your name,
He writes–not that you won or lost,
But how you played the Game"
This is part of a famous poem that reminds one to work towards a goal with fairness in approach and honesty in the mind and actions. This is a constant journey. Beyond this victory or defeat is only a temporary station. Those words sum up the 13 years of Sankalp India Foundation. As a team we have tasted several victories and losses, but held nerve to not give up on the honest and fair way of doing things .
"State level Consultation on Status of Thalassemia and Other Hemoglobinopthies in Karnataka" was organised by Sankalp India Foundation with the major thalassemia centers in Bangalore as co-hosts on 9th of March 2016 at Rashtrotthana Parishat, Bengaluru.
World bank data on maternal mortality shows that even in 2011-2015 we had 174 in every 100,000[1] women dying because of pregnancy related causes. We contribute to the highest number of maternal deaths globally and stand at the 127th position in the world on maternal mortality ratio.
