Prolonged blood transfusion therapy and anemia can cause cardiac problems. Cardiac problems contribute significantly to mortality and poor quality of life for thalassemia patients. Timely intervention can help prevent and manage cardiac complications and save the patient and the family from suffering and huge financial burden.Annual cardiac screening has been prescribed for all children with thalassemia major above the age of 12 years.
The news of a child being born with thalassemia devastates the family. More grueling is the struggle to find the way ahead for disease management. Each family was forced to wage their own battle and find their way through. The situation is most difficult for the poor and the illiterate parents.
On World Blood Donor’s Day, Department of Blood Transfusion Medicine, Bangalore Medical College felicitated Sankalp India Foundation for organizing regular voluntary blood donation drives . We have committed to the department on behalf of all the voluntary blood donors that there will be no shortage of blood.
We at Sankalp India Foundation get numerous blood requests. We are uniquely positioned in a sense that we tend to get the more difficult to manage blood requests - rare blood groups, difficult situations, timings, lesser known components etc. Over the years as the number of requests has increased, the good news is that we find it easier to handle the most difficult of situations.
Sankalp India Foundation has been involved with Thalassemia management for 3 years now but walking into the thalassemia day care is not an easy thing for me. I love to interact with the children and the families, try to reassure them, help them with their doubts, listed to them, and see their smiles. However, what sticks to my mind more is the occasional sigh of child with bad complications associated with improper thalassemia management.
Prolonged blood transfusion therapy and anemia can cause cardiac problems. Cardiac problems contribute significantly to mortality and poor quality of life for thalassemia patients. Timely intervention can help prevent and manage cardiac complications and save the patient and the family from suffering and huge financial burden.Annual cardiac screening has been prescribed for all children with thalassemia major above the age of 12 years.
We at Sankalp India Foundation get numerous blood requests. We are uniquely positioned in a sense that we tend to get the more difficult to manage blood requests - rare blood groups, difficult situations, timings, lesser known components etc. Over the years as the number of requests has increased, the good news is that we find it easier to handle the most difficult of situations.