Thanks to the success of the Sankalp Program For Thalassemia Cure, people from different corners of the country look forward to our group for BMT for thalassemia. With haplo identical transplants also beginning to show some promise, BMT is now being sought by many families. The not for profit costs and the fine results has made even people of Kutch look forward to transplants.
The end of month of September was particularly busy for Team Sankalp as we geared up to offer HLA typing to about 200 families. Thanks to the support of Cure2Children Foundation - Italy and DKMS Germany, Sankalp has pioneered access to free HLA typing in a systematic and impactful way over last few years.
Sankalp is committed to enabling delivery of better quality in each of the blood donation drives. A critical component in quality assurance is the systematic capturing of the data which could be used to quantify performance. Ever since 2007, when we started our blood donation drive, we evolved several tools which are used to assess the quality of the blood donation camp including feedback for each stakeholder, performance as against targets, noncompliance, complications, deferrals etc.
In 2003, we saw a man die in an ICU. The family of the man was running from pillar to post looking for blood donors! The pain, agony and helplessness led to the formation of Sankalp India Foundation. For some time after that, we continued to see blood banks as institutions where blood should be provided when when there is a need. We continued to maintain donor lists! As we worked through the blood requests - we realised that by waiting to donate blood when people need, we were actually ensuring that the family goes through very anxious time.
The Sunday Diaries Little stories from our day care centers
Sundays are busy at Samraksha. Several families are there for the weekly therapy and counselling. Some are there just to chat about the upcoming transplantations scheduled for their children. I had a message delivered to me today by the mother of one of the children who had undergone transplant today.
