Sankalp’s SAFE BLOOD Program - Information for Blood Donors
A leap forward in blood safety for potential transplant patients
Thalassemia
Two day training on Effective Management of Thalassemia
As part of the continuous learning initiatives adopted by Sankalp, a 2 day meeting for coordinators, nursing staff and doctors from the multiple thalassemia day care centres where Sankalp is involved was organized in Bangalore on the 23rd and 24th of January 2019
Annual Cardiac Screening Started for Thalassemiacs
Prolonged blood transfusion therapy and anemia can cause cardiac problems. Cardiac problems contribute significantly to mortality and poor quality of life for thalassemia patients. Timely intervention can help prevent and manage cardiac complications and save the patient and the family from suffering and huge financial burden.Annual cardiac screening has been prescribed for all children with thalassemia major above the age of 12 years.
Thalassemia Prevention, Management and Cure
Last month we had 205 patient visits with 276 transfusions at Indira Gandhi Institute of Child Health. The average pre-transfusion hemoglobin was 8.3gm/dl and the estimated post transfusion hemoglobin was 12.1 gm/dl. At Samraksha we had 164 patient visits with 205 transfusions. The average pre-transfusion hemoglobin was 8.7gm/dl while the estimated post transfusion hemoglobin was 12.3 gm/dl.
Workshop on Thalassemia Management and Transplantation
On 19th February 2015 a group of people with very high interest in improving care and management for thalassemia came together in a room to explore the next steps for thalassemia management.
The intention was to share and to learn in an environment which maximizes learning and fosters cooperation.
The participants were
There no blood match for this boy
BANGALORE: At 13, he is suffering from a disease that requires him to get blood transfusions regularly. Thalassaemia may not be rare, but Kiran Manjappa's blood group is.
Sankalp Program for Thalassemia Management
Vision
Each thalassemia patient should receive appropriate and adequate care and management irrespective of their financial status with the goal of restoring the quality and normalcy of their life.
Sundays @ Samraksha
Sundays have had a different meaning altogether for Project Samraksha, the Thalassemia Day Care Centre at Rashtroothhana Parishat. While the rest of the world enjoys their day off from work, the staff of the blood bank and the day care center put their best foot forward to work on their busiest day of the week. With the intention of causing minimal disruption to education and work for the families of children suffering from thalassemia. Samraksha continues work on the weekend. Individuals who need to come to the centre more often than the others are scheduled to come on Sundays.
The Dream That Persists – Possibly Forever
November 14 2011 saw the birth of a new commitment for volunteers at Sankalp. From a bunch of volunteers taking up emergency blood requests and organizing a few blood donation drives, we took up something more serious and potentially game changing.
News and Updates from April 2015
Rakta Kranti
With the onset of the new financial year, Sankalp Rakta Kranti Team looked to make a strong start with plenty of blood drives catering to the summer period. On the back of a year with close to 12,000 units collection having gone by, the team wanted to maintain the same momentum. In summary, 1055 units were collected in 13 drives. We had about 3% of donors having post donation complications and the percentage of deferrals for the month was 22.3.
Thalassemia Management offers unique opportunities for Quality Assessment of blood banks
Thalassemia management offers a unique opportunity for measuring the quality of blood transfusion services. Children suffering from thalassemia who are on chronic transfusion therapy generally come back to the same centre for treatment and management. This enable insights into blood transfusion medicine which otherwise may be very difficult to get.
An intent to periodically measure the quality of blood transfusion service and also to act upon the findings is obviously the first step.