There is a time, when in life some families face lot of difficulties, struggle a lot, and then, they came over of hard time. Daiyaan's family is a perfect example of this.
Sankalp Program for Thalassemia Management is aimed at ensuring that adequate and appropriate care is provided to each child taking coming to our centres. The overall aim is to resume normalcy in their lives. A key component in this pursuit is reducing the time it takes to provide appropriate medical intervention. For individuals who need to come back for follow-up every few weeks and for patients who travel long distances to seek care, every hour saved matters a lot.
Whose responsibility is it to provision safe blood for patients in need? The patient/patient family? or the hospital/blood bank? or the blood donor/donor organizations or all of them together?
On 23 December 2016, an incredible feat was achieved when units of extremely rare Bombay Negative blood group were transported from India to Sri Lanka for a patient fighting cancer.
Thalassemia major is characterized by the individual not being able to produce enough good hemoglobin. This is called ineffective erythropoiesis. This condition leads to a cascade of compensatory mechanisms. First it leads to massive bone marrow expansion, unusual organs become involved in attempting to make blood cellular components, the absorption of iron from the food intake increases and consequently there is severe organ damage.
Five years back, on 14th November 2011, with the cutting of a ribbon the Thalassemia Day Care Centre at Indira Gandhi Institute of Child Health was formally inaugurated. A small gift of children's day, a step in the direction of health, well-being and fulfilment of dreams for the little ones.
