Indira Gandhi Institute of child Health celebrated the World Thalassemia Day on 29 April 2016
28 April 2016 , Bangalore
The Thalassemia Day Care Centre at Indira Gandhi Institute of Child Health celebrated the World Thalassemia Day on the 28th April 2016. The event saw enthusiastic participation of the patient families and the medical team alike.
“Bulk transfer of blood between blood banks of all sectors permitted by NBTC” was published in the Volume 6 Issue 4 of Sankalp Patrika. The good news is that at least the State Government of Karnataka has accepted the guideline issues by NBTC in its totality in the Second Meeting of the Technical Expert Committee of KSBTC help on 11 March 2016. This is great news for the blood banks in the state.
As little children, we all looked forward eagerly to the summer holidays. For the team at Project Samraksha and the school-going children who come for treatment there, the anticipation for the summer holidays is just the same, however for a different reason. We plan to make use of every holiday season to give deferoxamine infusion to the children who are not responding sufficiently to oral chelators. Deferoxamine infusion can be very effective in controlling iron levels in the body.
by Dr Reshma Shrinivas, Medical Officer In-charge, Project Samrkasha Thalassemia Day Care, Rashtrotthana Parishat, Bangalore
On 1st March 2016, when 13 year old Viren(name changed) was brought to Samraksha for the very first time, he was carried by his father on his back. The staff was surprised looking at a 13 yr old being carried by his father. The father explained to us saying Viren cannot walk even a furlong distance.
The decision whether to undergo BMT might be a difficult one for many families and patients. As a general rule most children born with thalassemia who have regular access to appropriate supportive care may have a long and productive life.
"For when the One Great Scorer Comes to mark against your name, He writes–not that you won or lost, But how you played the Game"
This is part of a famous poem that reminds one to work towards a goal with fairness in approach and honesty in the mind and actions. This is a constant journey. Beyond this victory or defeat is only a temporary station. Those words sum up the 13 years of Sankalp India Foundation. As a team we have tasted several victories and losses, but held nerve to not give up on the honest and fair way of doing things .
