October 2018, Volume 8, Issue 5

This is a story of a boy who is 14 year old and very smart. He belongs to a very small village of Bihar.

Let’s share a scenario. A person is anemic with a Hb of 9 gm/dl and brought in for a surgical procedure. The doctors agree that the chances of bleeding are low and yet to be on a safer side they request for a unit of blood to be kept ready.

It has been three years since the time Sankalp started the program for thalassemia cure. We started our bone marrow transplantations for patients who had a matched related donor only. Even in this selected group of patient, recent data shows that the team has achieved 95.5% disease free survival and 98.3% overall survival last year, building upon the success of previous years. Specially in the matched sibling context, the team improved disease free survival from 89.1% across the years to 98.3% for last year alone.

Sankalp India Foundation have always focused on strategic planning of blood donation drives to ensure availability of blood throughout the year.

In September 2018, we took our mission for "Thalassemia Free India" further by signing up the MoUs to replicate our model of comprehensive care and management for thalassemia in more regions.

A new step forward has been made in our mission to ensure that children suffering from Thalassemia get proper care and management with the inauguration of the new Thalassemia Day Care Centre at RMM Global Hospital Trauma Centre at Abu Road in Rajasthan on 1st October 2018.

Sankalp India Foundation, a Bangalore based voluntary organization started in 2003, achieved a double milestone of having completed 100 Bone Marrow Transplants for children with thalassemia, and have collected 100,000 units of blood through voluntary blood donation drive