On January 26, 2025, as the nation celebrated Republic Day, four incredible blood donors chose to celebrate in a way that gave life and hope. They came forward to support our HLA Matched Transfusion initiative, a specialised program that makes transfusions safer and more effective for children living with thalassemia.
Why HLA Matched Transfusions Matter
Like many families affected by thalassemia, Arpitha and Kanthraj were unaware of the genetic disorder affecting their children. Each child developed complications and did not survive beyond the first year. Despite multiple hospital visits, not a single doctor informed them about Thalassemia, leaving them in the dark about its consequences.
At Sankalp India Foundation, every step we take is guided by one simple principle—to give children and young people living with thalassemia the safest and best possible care. Blood transfusions form the backbone of thalassemia management, and ensuring their safety is non-negotiable.
On their recent visit to Bengaluru, the Huron leadership team, including Mark Hussey, CEO and President, and John Kelly, CFO, along with senior leaders Costa Magas, Paul Praveen, Gulpreet Kaur, Anand Shanty, and Kokoth, spent a day with us at Sankalp India Foundation to learn more about our work in thalassemia management, prevention, and cure.
At Sankalp India Foundation, we often meet young people whose courage inspires us every single day. One such story is that of Manjunath NR, a 24-year-old thalassemia warrior whose life reminds us why we do what we do.
At Sankalp India Foundation, we believe that every child living with thalassemia deserves timely, safe, and compassionate care. Our day care centres are built on this promise, and with each expansion, we take a step closer to reaching more families in need.
In a significant step toward combating Thalassemia, Health 1 Hospital in Ahmedabad recently hosted a transformative HLA testing and counseling session for 20 families of Thalassemia patients. Organized by Sankalp India Foundation, the event aimed to educate families about Thalassemia and the life-changing potential of Bone Marrow Transplantation (BMT).
In a significant acknowledgment of Sankalp India Foundation's tireless efforts in healthcare, Mr. Jayesh Rathod, the Epidemic Medical Officer of Wadhwan, praised the organization's comprehensive approach to public health during a recent meeting at the Taluk Health Office. "Sankalp India Foundation is doing the job that we're supposed to do," remarked Mr. Rathod, followed by enthusiastic applause from the gathered officials.
On 6th January, Sankalp India Foundation marked a significant milestone in its mission to streamline thalassemia care by initiating critical improvements at the newly established government day care center in Ananthpur. This center, which had long struggled with inadequate facilities and inefficient processes, is now poised to offer faster and more reliable treatment, thanks to Sankalp’s dedicated efforts.
Key Changes and Achievements
Sankalp India Foundation is excited to announce the successful installation of a state-of-the-art blood irradiator at our facility, marking a significant advancement in the safety and effectiveness of bone marrow transplants (BMT). This essential piece of equipment will play a pivotal role in ensuring the highest standards of care for our patients undergoing transplants by irradiating blood products before they are used in treatment.
We started the year strong! On the Cure side, we’re focused on keeping our program fully engaged throughout the year and planning the inauguration of our new unit in Ahmedabad.
Within Management, we’re restructuring to handle increased activity, addressing current challenges, and creating a mitigation plan.
On the Prevention front, we’ve tested over 15,000+ individuals in the first month, with plans to expand further.
Blood Donation
Collected 789 units of life-saving blood in 25 camps, impacting countless lives through generous donations.
Thalassemia Management
