Prolonged blood transfusion therapy and anemia can cause cardiac problems. Cardiac problems contribute significantly to mortality and poor quality of life for thalassemia patients.
On a busy day in a blood donation drive I was taking care of the pre-donation area. The room available for the camp was not very large so the registration and waiting area were organised in the corridor outside.
Prolonged blood transfusion therapy and anemia can cause cardiac problems. Cardiac problems contribute significantly to mortality and poor quality of life for thalassemia patients.
The news of a child being born with thalassemia devastates the family. More grueling is the struggle to find the way ahead for disease management. Each family was forced to wage their own battle and find their way through. The situation is most difficult for the poor and the illiterate parents.
We at Sankalp India Foundation get numerous blood requests. We are uniquely positioned in a sense that we tend to get the more difficult to manage blood requests - rare blood groups, difficult situations, timings, lesser known components etc.
Sankalp India Foundation has been involved with Thalassemia management for 3 years now but walking into the thalassemia day care is not an easy thing for me. I love to interact with the children and the families, try to reassure them, help them with their doubts, listed to them, and see their smiles.
The following article relating to remand for replacement blood units has been taken from the Facebook post of one of our volunteer.
If the blood banks can't accept blood from reputed, licensed blood banks in the city then why should the Government ask for increasing voluntary blood donation at all?