Sankalp Program for Thalassemia Cure

Sukrana Two years back, in the first few day of March, Sukrana received her bone marrow transplantation at South East Asia Institute of Thalaasemia Jaipur. It was the first transplant supported by Sankalp India Foundation and the beginning of a journey towards cure from the disease.

A clinical trial is an important element of research in the field of medicine and science. Before any treatment protocol, or medicine or any practice related to the patient is brought into mainstream practice, it is essential that the trials have proved it's impact.

It was an incredible experience working in the Bone Marrow Transplant unit of People Tree Hospital -Sankalp collaboration. I absolutely fell in love with the meticulous nature and detailed organization in the system. It gives an opportunity to the physicians to remotely monitor patients with able assistance from the nurses.

We read somewhere - "Perseverance is not a long race; it is many short races one after the other." Anushree personified it.

Bone marrow transplantation is becoming an increasingly acceptable curative option for patients suffering from thalassemia. This coincides with improved access to care and management of thalassemia.

There is a time, when in life some families face lot of difficulties, struggle a lot, and then, they came over of hard time. Daiyaan's family is a perfect example of this.

Five years back, on 14th November 2011, with the cutting of a ribbon the Thalassemia Day Care Centre at Indira Gandhi Institute of Child Health was formally inaugurated. A small gift of children's day, a step in the direction of health, well-being and fulfilment of dreams for the little ones.

This year a young couple with 11 month old baby girl named as Prachi Bhanushali contacted us for help with Bone Marrow Transplantation.

It was more than a year back when we a family who had two little girls suffering from thalassemia from Afghanistan approached Cure2Children Foundation for help with HLA typing. The family was overjoyed to find that both the girls had a match. The father of the girls is a driver and could not have afforded transplantation.

Normally, when you tell a family which has a child who suffers from thalassemia, that they have a match, at least for one moment you expect to see a smile. This was not the case when we broke the news to five-year-old Nirmitha's family. She was detected with thalassemia within the first year of her birth and ever since she was dependent on monthly blood transfusions.