Asia Pacific Bone Marrow Transplantation Meet was organised at Singapore from 28-30 October 2016. The Sankalp-Cure2Children Network was happy to have 6 of our posters selected to be presented at the meeting. In-line of our commitment to transparency, innovation and quality we continue to scientifically analyse and share our work.
How do we offer transplants to more children?
How do we make transplantations safer?
How to we ensure that the best quality is delivered at the least cost?
Sundays are busy at Samraksha. Several families are there for the weekly therapy and counselling. Some are there just to chat about the upcoming transplantations scheduled for their children.
Sankalp India Foundation, Bangalore, Think Foundation, Mumbai and We Care Trust, Mumbai collaborated with Kokilaben Dhirubhai Ambani Hospital,Mumbai and had started a Bone Marrow Transplantation Project at Mumbai for Thalassemia patients coming from financially poor background.
The decision whether to undergo BMT might be a difficult one for many families and patients.
At Sankalp India Foundation, We firmly believe that each child must be given an option for complete cure irrespective of their financial status. The HLA test is the first step which determines whether the sibling can be a matched donor to the child suffering from thalassemia. The cost of HLA typing in India is around Rs. 10,000/- per family making it inaccessible to most families.
"State level Consultation on Status of Thalassemia and Other Hemoglobinopthies in Karnataka" was organised by Sankalp India Foundation with the major thalassemia centers in Bangalore as co-hosts on 9th of March 2016 at Rashtrotthana Parishat, Bengaluru.
23rd March Bangalore
Yesterday a family came to seek help for their child who is detected with thalassemia. We meet parents only on Sundays but we made an exception for this family as they had come all the way from a place 600 km away. The 8 month old baby girl had already received 3 transfusions and the family wanted to discuss the prospects of transplants.
