When nine families began their journey towards cure
23rd March Bangalore
Sankalp Program for Thalassemia Cure
What do we know about long-term outcomes of bone marrow transplantation for the cure of thalassemia?
- Dr. Lawrence Faulkner. Director Sankalp-People Tree Hospitals Bone Marrow Transplant Unit, Bangalore, India and Medical Coordinator Cure2Children Foundation Florence, Italy.
Caught between ignorance and business – Vulnerable parents of children suffering from thalassemia
Yesterday a family came to seek help for their child who is detected with thalassemia. We meet parents only on Sundays but we made an exception for this family as they had come all the way from a place 600 km away. The 8 month old baby girl had already received 3 transfusions and the family wanted to discuss the prospects of transplants.
Sundays - the days of hopes
It was around July last year when we decided to put laziness behind and initiate the Sunday get-together for Thalassemia. There was a situation where several parents wanted to meet us and have discussions about various issues faced by their children.