The next edition of the Sankalp-Cure2Children Network meeting for BMT was organised on 4&5 June 2019 at People Tree Hospitals, Bangalore. The two day meeting held every six months is an opportunity for our transplant teams to get together and brainstorm - contributing to the fine outcomes.
Thanks to the success of the Sankalp Program For Thalassemia Cure, people from different corners of the country look forward to our group for BMT for thalassemia. With haplo identical transplants also beginning to show some promise, BMT is now being sought by many families. The not for profit costs and the fine results has made even people of Kutch look forward to transplants.
Sankalp is committed to enabling delivery of better quality in each of the blood donation drives. A critical component in quality assurance is the systematic capturing of the data which could be used to quantify performance.
In 2003, we saw a man die in an ICU. The family of the man was running from pillar to post looking for blood donors! The pain, agony and helplessness led to the formation of Sankalp India Foundation. For some time after that, we continued to see blood banks as institutions where blood should be provided when when there is a need. We continued to maintain donor lists!
The Sunday Diaries Little stories from our day care centers
Sundays are busy at Samraksha. Several families are there for the weekly therapy and counselling. Some are there just to chat about the upcoming transplantations scheduled for their children.
He raised his hands for the customary greetings as he nervously walked into the counselling room. He was the father of a child who is being prepared for bone marrow transplantation for the last one year. Every Sunday he travels from Chamrajnagar so that we can give his child most carefully monitored therapy.
Although born and raised in Chennapatna, the town of toys, Syed Fahim’s childhood was not a joyous one. His life was different form the other little kids he met in school. Every month, he had to travel to Bangalore – 60 kilometers away from home – for a pint of blood, the only thing his body couldn’t produce.
In the last month alone, we came across two blood donation camps which we will cherish in the archives of our good memories. On 3rd Jan, Sankalp organized a blood donation camp with the Terapanth Yuva Sangh, a Jain institution located in Gandhinagar, Bengaluru. It was one of those rare camps where women donors outnumbered men.
By Dr. Lawrence Faulkner. Director Sankalp-People Tree Hospitals Bone Marrow Transplant Unit, Bangalore, India and Medical Coordinator Cure2Children Foundation Florence, Italy.
The short answer is no. Why than many families with a child with thalassemia collect and store cord blood?
Fifteen-year-old Pavan Kumar Singh is a known thalassemic child. When he was diagnosed at the age of 3 months, his family did not have an idea what thalassemia was. He was taken to every possible hospital in Bangalore to find out if there was a cure for his condition.
