Blogs

Managing Emergencies for Thalassemics - A little boy who beat the odds.

After the end of a long busy day as I sat to look at some videos, I got a call from Dr Reshma. She informed me that a child who is taking treatment at our centre needed an urgent appendicectomy – removal of his appendix which had become infected and inflamed. It was a Saturday night. The patient had travelled from a place 200km away from Bangalore and reached a prominent Government Hospital in Bangalore for the urgent surgery. However, there was no surgeon available at the hospital.

The little girl’s story - Stories of hope and learning from our thalassemia program

When I walked up the stairs of Samraksha today I realised that a little girl was peeping down from the stairs. The look in her eyes told me that she was waiting for me. I shared the usual pleasantries with the family and walked across a hall full of children and parents straight to the doctor's room. We had a meeting scheduled for the day and soon I found myself with 2 of my friends in a room discussing the future roadmaps.

Summer vacations roped in to fight ferritin

As little children, we all looked forward eagerly to the summer holidays. For the team at Project Samraksha and the school-going children who come for treatment there, the anticipation for the summer holidays is just the same, however for a different reason. We plan to make use of every holiday season to give deferoxamine infusion to the children who are not responding sufficiently to oral chelators. Deferoxamine infusion can be very effective in controlling iron levels in the body.

By the way, whose responsibility is it?

Submitted by sankalp on

Over the 9 years of Sankalp Rakta Kranti, the policy of selecting a blood bank for a drive has been the willingness of the institution to adhere to working standards as mandated by NACO and Drug Controller Gazette, transparency in making units available to any patient on need and most importantly give donors a conducive environment to spur them on to become regular voluntary blood donor for life.

Thalassemia and dropping out of school did not stop Jyoti from becoming an author

Submitted by souravroy on
Jyoti Arora is a resident of Ghaziabad. She suffers from thalassemia major. Thalassemia is a blood disorder characterized by abnormal formation of haemoglobin. This results in improper oxygen transport and destruction of red blood cells. This means that she has to undergo blood transfusions every three weeks. In a developing country like India, most thalassemia patients do not live to see an adult life. Due to irregularities in blood transfusion and iron accumulation in internal organs, they suffer from slow physical and mental growth. Jyoti’s story, however, is different.

Final war against polio

Submitted by souravroy on
As part of India’s endgame strategy, last week Lok Sabha was informed that Inactivated Polio Vaccine (IPV) will soon be given to children as an additional dose at 14th week along with DPT3 and Oral Polio Vaccine (OPV3) to children. According to PTI, the National Technical Advisory Group on Immunisation (NTAGI) has made this recommendation in its meeting held on 12th June last year. Usage of social media as part of strategy to create awareness and dissemination of information about health initiatives is also being discussed.

Are we doing enough? Are we doing it right?

Sankalp has been involved in thalassemia management for last 3 years. What started as an initiative with very little prior experience and knowledge has blossomed into a comprehensive thalassemia management and care program. In the last three years we have benchmarked our performance with our won prior results and using the Thalassemia international Federation's guidelines for clinical management as the gold standard to compare against. Centres supported by us have indeed shown vast improvement in the quality of care being given to the thalassemia patients.

Cost of life

Submitted by souravroy on

India is the world’s biggest provider of cheap and affordable medicines to the developing world. Of course, most developing countries don't like that!

11th Anniversary

Submitted by sankalp on

Each day pass by and leave behind a memory. No history was written in a day and today when we stand at a juncture after a decade of hard work the most satisfying word that means the most in our life is ‘’ Trust’’ . Trust of blood donors, trust of blood banks, trust of the people in search of blood and every associated individual or organisation. Now that we have won the trust of thousands of people all over the country the challenge lies in keeping the trust alive and stepping ahead gradually in our endeavours to make the difference in blood banking as a whole.