Sankalp Program for Thalassemia Cure

Jainish Nakum’s life began with struggle when he was diagnosed with thalassemia major at just seven months old. What followed were years of hospital visits, blood transfusions, and constant care as his parents Jaman and Mital worked to keep him stable.

Amid this journey, the family welcomed their younger son, Drumil, bringing hope into their lives. However, a cure felt distant due to the cost and complexity of treatment, especially HLA testing required for a bone marrow transplant.

Virat’s parents, Nemichand and Seema, saw their lives change completely when their young son was diagnosed with thalassemia major in infancy. What followed were years shaped by transfusions, medical care, and the constant effort to protect his health.

Despite the challenges, the family found strength in one another, raising their daughters alongside Virat and holding on to the hope that a cure might one day be possible. Yet the absence of a fully matched donor made that path feel uncertain.

Ahmedabad marked a special moment for Sankalp India Foundation this month, bringing together both a proud milestone and a meaningful new beginning.

Dr. Mohana Reddy represented Sankalp India Foundation at the American Society of Hematology (ASH) Annual Meeting, one of the world’s most influential platforms in hematology, by presenting a scientific poster. 

The presentation highlighted Sankalp’s sustained work in research, innovation, and evidence-based care, particularly in hematology and stem cell transplantation, demonstrating how on-ground clinical practice informs and strengthens scientific inquiry. 

Jasper, diagnosed with Sickle Cell Disease at age 1, faced regular blood transfusions and frequent hospitalizations due to severe pain crises.