Blogs

Alpha-Thalassemia: Looking Beyond Routine Tests

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When routine blood tests leave questions unanswered, further testing can help families understand an inherited blood condition.

Sankalp Labs has introduced alpha-thalassemia deletion testing using MLPA (Multiplex Ligation-dependent Probe Amplification). The test detects missing sections of DNA in the alpha-globin gene cluster, helping clarify cases where routine findings are inconclusive.

Learning from Care, Improving Care

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Every child deserves a team that keeps learning from what went well and what proved difficult.

The Sankalp–Cure2Children Network (SCN) meeting brings transplant physicians, quality and research teams together with collaborating institutes to review experiences and outcomes. Together, they review and improve the treatment protocols that guide each child’s care and identify areas for further research.

Each review serves one purpose: using what we learn today to improve care for the next child.

60 Transplants. A Shared Promise to Families.

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For a family hoping for a transplant, having support can make the next step possible. Thalassemia Bal Sewa Yojana (TBSY) helps turn that hope into access to treatment.

On 8th September 2026, Sankalp BMJH, Bengaluru, was recognised in New Delhi for 60 bone marrow transplants under TBSY. The occasion marked 1,000 transplants through Coal India Limited, Thalassemics India and the Ministry of Health & Family Welfare.

Across Communities, a Commitment to Give

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The need for blood continues long after a donation camp ends. Meeting it takes donors, volunteers and partners willing to return, across communities and over time.

This commitment earned Sankalp India Foundation the Global Reach & Local Leadership Award at Goodera’s Karma Summit Asia 2026 on 3rd September. Selected from over 100 nominated NGOs, Sankalp was recognised for the reach and impact of its voluntary blood donation efforts.

Grateful to Goodera and everyone who makes this work possible.

Learning Together, Reaching More Children

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Shared learning can bring care closer to children. At Vietnam’s 2nd International Thalassemia Conference, Dr. Mohan Reddy shared transplant experience; Rajat Kumar Agarwal discussed prevention and comprehensive care.

Hue Central Hospital celebrated its first 20 BMTs, with all children doing well. We congratulate Dr. Kim Hoa’s team, supported by Dr. Lawrence Faulkner, Cure2Children and DKMS.

We are grateful to contribute through training and technical support, and remain committed to learning together.

“The ‘Yes’ We Feared Changed Our Son’s Future”

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For years, Waliullah’s family lived from one blood transfusion to the next. Then came a fully matched donor and a possible way out of thalassemia.

The news should have brought relief. Instead, it brought fear.

 

The youngest of 6, Waliullah was diagnosed when his parents were already around 50. Having struggled to accept regular transfusions, a bone marrow transplant felt overwhelming. “We had many doubts and fears. As parents, making this decision for our child was extremely difficult.”

“She Has Suffered a Lot. Today, My Daughter Is a Warrior”

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“When Rashiddhya, was diagnosed with thalassemia major at three-and-a-half months, we were terrified. We thought everything was over,” recalls her mother from Akola.

During pregnancy, she had undergone every test advised, yet no one explained that thalassemia could be a possibility or that screening could reveal the risk. Looking back, she speaks with painful honesty:

Nine Flipkart Volunteers Choose to Give Back

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What turns awareness into action? Sometimes, it is the chance to understand a cause up close. During a Goodera coordinated visit on 20th August, the Flipkart team learnt about thalassemia, Sankalp’s Cure and Prevention Programmes, and why voluntary blood donation matters.

Time with the children made it personal.

Before the day ended, nine volunteers had stepped forward to donate blood. One participant put the feeling into words:

A Birthday Gift That Reached 88 Families

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How do you celebrate someone who has spent years guiding and strengthening others?

By allowing that goodness to travel further.

For Ajith Sankaran’s 53rd birthday, his former student, Silky Rout, honoured him with a contribution towards Sankalp’s thalassemia prevention work. Her contribution will help 88 families receive screening, giving them the opportunity to understand their risk early and make informed choices for their children’s future.